Caregiver Insights Personal caregiver experiences shared for community awareness only. Families sometimes look for general insight from other caregivers about navigating services and systems related to disability support. This page allows caregivers to voluntarily share personal experiences to support informed conversations within the community. Community Experiences Disclaimer Caregiver Insights shares voluntary caregiver perspectives about navigating services and community experiences. These submissions reflect individual experiences only and are not endorsements, recommendations, or evaluations of any provider or organization. 👉 Share Your Experience Share Your Experience You may choose how much information to provide, and submissions may be summarized or shared publicly without identifying you. Your role Parent / Caregiver Self-advocate Other Provider Type Pediatrician Specialist Therapist (PT / OT / SLP / ABA) Clinic / Hospital Other Organization or service referenced (optional) City / Region* Why families often ask about this provider I understand that this information reflects personal caregiver experience only and may be summarized or shared publicly without identifying me. * Your email (optional – not published) Important note: AJ Family Support Foundation does not recommend, evaluate, or endorse healthcare providers. Information shared through this form reflects individual caregiver experience only and is provided for community awareness purposes. Submit Experience

Understanding Your Medicaid Rights in Nevada | AJ Family Support Foundation Understanding Your Medicaid Rights Understanding Medicaid Care Options for Medically Complex Children in Nevada (FAQ) What is TEFRA / Katie Beckett Medicaid? TEFRA (also known as Katie Beckett) is a Medicaid eligibility option for children under age 19 with significant disabilities or medical complexity. It allows a child to receive Medicaid based on their medical needs alone, even if their parents’ income would normally be too high to qualify. Does TEFRA automatically mean we receive paid in-home care? No. TEFRA establishes Medicaid eligibility, but it does not automatically authorize services. Families must still request and receive approval for services such as: Home health nursing Private duty nursing Other Long-Term Services and Supports (LTSS) What language can families use when requesting services? Families may find it helpful to say: “Our child qualifies under TEFRA and requires medically necessary in-home services. We would like to discuss all available options, including agency-provided nursing and other authorized LTSS supports.” Does my child being a minor disqualify them from Medicaid services? No. TEFRA is specifically designed for minors under age 19. Once approved: the child is considered a Medicaid recipient in their own right, and parental income is not counted for eligibility. How does Nevada deliver in-home services? Nevada provides in-home supports through: Long-Term Services and Supports (LTSS) Home and Community-Based Services (HCBS) frameworks These programs exist to support care in the home instead of institutional settings, when safe and appropriate. What are the most important things to remember? Key takeaways: ✔ Being a minor does not disqualify a child ✔ TEFRA confirms that a child has significant medical or functional care needs beyond routine parenting ✔ Some restrictions apply only to specific programs (like PCS) ✔ Licensed parent nurses may be paid through an agency, if hired ✔ Unlicensed LRIs cannot be paid under self-directed skilled care ✔ Clear, accurate wording matters What counts as “beyond routine parenting”? Medicaid distinguishes between typical parenting tasks and medically necessary care. Examples of needs that may qualify as medical or functional care include: Inability to walk or transfer independently Lack of head or trunk control Seizure monitoring G-tube or medically assisted feeding Continuous positioning or safety monitoring When these needs are present, continuity of care becomes a medical safety issue, not a preference. What Medicaid service options may allow family caregivers to be paid? In limited and specific circumstances, Nevada Medicaid may allow family caregivers to be reimbursed when care is medically necessary and authorized. This may include: Licensed family members (nurses) hired by a Medicaid-enrolled agency, and Certain self-directed service models, when permitted and authorized under Medicaid rules. Eligibility, payment method, and caregiver qualifications depend on the type of service authorized, the child’s medical needs, and current Nevada Medicaid policy. ➡️ Families should ask their case manager to review all authorized options based on their child’s situation. ⚠ Important Disclaimer This information is provided for educational purposes only and does not replace individualized Medicaid determinations or case management decisions. Service availability and eligibility depend on medical necessity, authorization, and current Nevada Medicaid policy.

Who We Help (Eligibility & Service Area) AJ Family Support Foundation supports families raising children with disabilities by providing educational resources, navigation guidance, and referrals to community supports. Our mission is to reduce barriers and help caregivers make informed decisions. Primary Service Area Our primary focus is Las Vegas and Clark County, Nevada . We also provide general educational resources and guidance to families across the state of Nevada. While some information may be helpful to families outside Nevada, our navigation support is primarily Nevada-focused. Who May Benefit From Our Resources You may benefit from our services if you are: A parent, guardian, or caregiver of a child with a diagnosed or suspected disability Seeking help understanding Medicaid, waiver programs, SSI, or insurance coverage Navigating early intervention, therapy services, or special education (IEP process) Looking for caregiver education, planning tools, or local support resources Trying to understand next steps after a denial or delay in services Types of Disabilities We Commonly Address We primarily support families with children from birth through adolescence. Some resources may also apply during transition planning into adulthood. Age Range Developmental delays Autism spectrum disorder Neurological or genetic conditions Physical disabilities Communication impairments Complex medical needs Children requiring significant supervision or adaptive equipment What We Provide Educational guides and step-by-step checklists System navigation support Resource referrals Caregiver education and informational materials What We Do Not Provide To maintain clarity and protect families: We do not provide legal advice We do not provide medical advice We do not provide crisis intervention or emergency services We do not determine eligibility for government programs We do not submit applications on behalf of families If you are experiencing an emergency, call 911. How to Get Started Visit our Learn section to explore educational materials. If you still need support, contact us at contact@ajfamilysupport.org . We typically respond within 2–3 business days.